This journey began for our family four and a half years ago. I can
remember the smell of the doctor’s office, the sounds of a baby screaming
in the exam room next to us and the sick feeling in my stomach as the
doctor handed us a simple piece of paper that had been hurriedly copied
by one of the nurse staff and was off center and blurry, but the word at the
top was impossible to mistake as it was the diagnosis that we had feared . . .
AUTISM. My eyes filled with tears as the doctor walked toward the door and
it clicked shut with an enormous finality. I clutched the paper as if it were
my only possession on this planet and began to read the sterile and tormenting
prognosis for my little girl. The words stung my soul like poisonous darts
bringing despair and waves of emotion that is difficult to put into words. Was
this it? Was this piece of paper the best our doctor could do for us? I knew
at that moment that at some point in my life time that I would do something
to change this outcome. At the point of diagnosis or recognition of a delay,
families should be given something tangible, something besides a cheap
piece paper filled with worst case scenarios and grim statistics, something
useful, something practical, and maybe a little inspirational…that something
is what you are holding in your hands right now…Connections Issue #2.